National nephrectomy registries: Reviewing the need for population-based data
Pearson John, Williamson Timothy, Ischia Joseph, Bolton Damien Michael, Frydenberg Mark, Lawrentschuk Nathan,
소속 상세정보
( Pearson John )
University of Melbourne Austin Hospital Department of Surgery
( Williamson Timothy )
University of Melbourne Austin Hospital Department of Surgery
( Ischia Joseph )
University of Melbourne Austin Hospital Department of Surgery
( Bolton Damien Michael )
University of Melbourne Austin Hospital Department of Surgery
( Frydenberg Mark )
Monash University Department of Surgery
( Lawrentschuk Nathan )
University of Melbourne Austin Hospital Department of Surgery
KMID : 0358320150560090607
Abstract
Nephrectomy is the cornerstone therapy for renal cell carcinoma (RCC) and continued refinement of the procedure through research may enhance patient outcomes. A national nephrectomy registry may provide the key information needed to assess the procedure at a national level. The aim of this study was to review nephrectomy data available at a population-based level in Australia and to benchmark these data against data from the rest of the world as an examination of the national nephrectomy registry model. A PubMed search identified records pertaining to RCC nephrectomy in Australia. A similar search identified records relating to established nephrectomy registries internationally and other surgical registries of clinical importance. These records were reviewed to address the stated aims of this article. Population-based data within Australia for nephrectomy were lacking. Key issues identified were the difficulty in benchmarking outcomes and no ongoing monitoring of trends. The care centralization debate, which questions whether small-volume centers provide comparable outcomes to high-volume centers, is ongoing. Patterns of adherence and the effectiveness of existing protocols are uncertain. A review of established international registries demonstrated that the registry model can effectively address issues comparable to those identified in the Australian literature. A national nephrectomy registry could address deficiencies identified in a given nation’s nephrectomy field. The model is supported by evidence from international examples and will provide the population-based data needed for studies. Scope exists for possible integration with other registries to develop a more encompassing urological or surgical registry. Need remains for further exploration of the feasibility and practicalities of initiating such a registry including a minimum data set, outcome indicators, and auditing of data.
키워드
Kidney neoplasms; Nephrectomy; Registries
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