한국에서의 간질의 사회적 낙인
The Social Stigma of Epilepsy in Korea
이상암, 유희정, 허경, 박형국, 신동진, 송홍기, 정원영, 권오영, 이성수, 김요식, 김성은, 이병인,
소속 상세정보
이상암 ( Lee Sang-Ahm )
울산대학교 의과대학 서울아산병원 신경과학교실
유희정 ( Yoo Hee-Jung )
울산대학교 의과대학 서울아산병원 정신과학교실
허경 ( Heo Kyoung )
연세대학교 의과대학 신경과학교실
박형국 ( Park Hyung-Kook )
순천향대학교 의과대학 신경과학교실
신동진 ( Shin Dong-Jin )
가천의과학대학교 길병원 신경과학교실
송홍기 ( Song Hong-Ki )
한림대학교 의과대학 신경과학교실
정원영 ( Jung Won-Young )
조선대학교 의과대학 신경과학교실
권오영 ( Kwon Oh-Young )
경상대학교 의과대학 신경과학교실
이성수 ( Lee Sung-Soo )
원광대학교 의과대학 신경과학교실
김요식 ( Kim Yo-Sik )
인제대학교 의과대학 부산백병원 신경과
김성은 ( Kim Sung-Eun )
연세대학교 의과대학 신경과학교실
이병인 ( Lee Byung-In )
연세대학교 의과대학 신경과학교실
KMID : 0877220020060020128
Abstract
Background: To study social stigma of people with epilepsy (PWE) in Korea, focusing on which factors are associated with social stigma.
Methods: Data were collected from 400 adult epilepsy patients (51% male, mean age:32.9 years, range:19-64 years). Patients were recruited from 10 epilepsy centers in Korea. Clinical information about seizures was obtained by neurologists and the other information was collected by using self-completed questionnaires including stigma of epilepsy scale and several scales or questions.
Results: Thirty one percent of PWE felt stigmatized by epilepsy, 9% of them highly so. The presence of stigma of epilepsy was associated with duration of epilepsy, seizure remission or frequency, generalized tonic clonic seizures in the last 2 years, seizure-related injuries in the last year, the actual discrimination from society, all subscales of QOLIE-31, education, introverted and neurotic personality, helplessness, control, and confidence in problem solving, anxiety and depression, and self-esteem. Multivariate analysis identified discrimination from society, introverted personality, problem solving control, and emotional subscale of QOLIE-31.
Conclusion: Our data showed the prevalence of social stigma of PWE in Korea might be not high unexpectedly and suggested that the actual discrimination from society and patients’ coping style including personality might be important in feeling social stigma of epilepsy. Our results would be basic information for the further studies to clarify the causative factors to generate the stigma of epilepsy.
키워드
Social stigma; Epilepsy
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